Sunday, April 5, 2009

A Fine Lookin' group!


Yesterday was the MS Walk and I had at last 40 members not including the children that joined their parents to support me.  What a humbling experience to have not only that many people come, but on a freezing day where some even came to support me in the morning for a small spot on KGW 8 Portland with Kyle Iboshi at 7:15 am, when the event doesn't start until 10:00 am.  To add to the success of the event, the Gingell Gang raised $4, 800 dollars, which is $1,000 dollars more than last year.  WOW!!!


With much excitement and help from Brian Stout we were able to make T-Shirts this year, too!  It was really fun to show our team unity at the event.  Thank you everyone for your support, even those that weren't able to attend, from the bottom of my heart.  I had a great day from start to finish! 

Wednesday, April 1, 2009

MS WALK is this Saturday!

I am so excited for the walk this Saturday, I have become giddy.  The T-shirts came today hot off the press and look awesome!  Thank you so much Brian Stout for the design and all your hard work.  We also have one of the largest teams walking this year, if not the largest!  To date we have 36 people walking and that is not including the people I know are coming, but have not signed up yet.  We also have raised a total of $3, 560.  That is $200 more than last year!  This event is so amazing and I am so humbled with all of your support.  If you would still like to sign up it is:


Pioneer Courthouse Square
10:00 am
Saturday, April 4th

We will be the team in Black T-Shirts with Gingell Gang in Green!

MS doesn't sound so tragic:)

Every month I get the dreaded Momentum magazine for Multiple Sclerosis and it has a plethora of articles about the horrible issues included with MS and all the people with disabilities.  It also includes many ads regarding wheelchairs, scooters, and specialty showers.  Now, don't get me wrong, I don't doubt that these are issues people with MS have to deal with everyday and someday in my near or distant future I could be dealing with it, too.  But, it is hard to stay optimistic every time it comes in the mail.  Then to add to the magazine Oprah had Montel Williams on the other day and where he made many a comment that I whole-heartedly agreed with,  he is in a totally different place than me with MS too.


So, for the last year I have been praying consistently for God to tell me what I am supposed to be doing with MS.  Knowing he did not give it to me for schnikes and giggles.  With my personality, I thought on many occasions of putting the situation into my own hands and writing an article for Momentum magazine.  But, did not and decided to wait until I felt that, that was what I should be doing.  

Sure enough on Monday the PR person for the Oregon MS Society contacted me and wrote a story pitch to send to the media outlets for the walk.  Since then a online story has been written for Willamette Weekly and a Chronic Diseases  article was written in the Oregonian.  I am going to put a positive spin on this bad boy if it takes me a lifetime!

Here are the articles if you wanted to read them:


Sunday, March 29, 2009

My Thank You

This last year I have been doing a bible study for the story of Moses.  It has really made me think of what I am supposed to be doing and wonder if I am missing the opportunities that God is giving me to serve other people.  I felt like last year during the diagnosis with MS that I was beginning to see his hand in my life blatantly.  For example,  I had gained a lot of weight a couple of years ago and went on Weight Watchers which significantly changes the way you look at food.  I began to look at labels and really see the calories, dietary fiber, and total fat in food. More importantly I had some friends that were really pulling me to take a front seat on my relationship with God and to stop going halfway and then stopping.  I feel that by taking the front seat, God has taken my car and led me through Autopia.  He is keeping me on HIS path.  (Autopia used to be the car ride at Disneyland)


With all these things in mind, I can see Him preparing me for what was to come.  Last Valentine's day when I got the first blow from the neurologist of what this could be, my friends came running.  In fact, I cry as I remember how they were all falling apart at the news as I was, reaffirming me of the people God had placed in my life.In the following days my right leg began to bother me and I received a phone call from my friend, Meg saying I should call her friend and he is expecting my call.  He was  a neurologist.  After talking to him I understood that I should be going to the ER and this was going to speed up a process that he felt was going to inevitably be drawn out.  Upon arrival to the ER, which was empty, (I was informed by the desk that this was VERY abnormal for the kind of day it had been)the doctor that greeted me was a client of Will's.  He explained to me all that this could be and that I would be getting an MRI in the next 24 hours.  He prescribed Valium to calm my nerves and assurance for the next day that I would know what was going on.  Sure enough in the morning I received a phone call with the time of my MRI and I went in.  Within 4 hours of my MRI, Will had gotten a call at home from the ER doctor telling him of the lesions on my spine, where they were, the couple in my brain, and which MS doctor I should call.  He had also notified the doctor on call and I was to begin steroids that afternoon.  God had surely placed all these people in my path.  I know this because everything was incredibly smooth from the moment Meg's friend was placed in my path. 

To add more proof, as many know, I have never been one to watch food, but randomly decided to do Weight Watchers that summer before diagnosis.  I am now on a somewhat strict MS Diet that I have chosen to do as it has proven to put off disability for 30 years.  This has made me have to examine every label on food and ask food servers questions on many occasions about how something is cooked.  

Also, I had two options for the medication I would be given.  If you have ever watched a movie with me you would know that I don't handle blood or shots well at all.  With MS I have to give blood tests every three months and injections to myself 3 times a week.  The shot that was recommended to me was an infusion originally and had a side effect of a rare brain infection that can kill you.  I was relieved that the MS Specialist, Stan Cohan, preferred to take a less risky path and to see if Rebif would work, which comes with an apparatus that helps to administer the injections.   As many of you have read I am flourishing on this method of medication and one lesion is undetectable now.

I have been struggling this past year to read the stories of all the people with MS that are disabled, in pain, blind, or worse, yet understanding that is the case for some and may be in my future sooner or later.  However, I wanted to be the voice for those that need to see that you can live a very normal life with MS.  My days are not all great, but whose are.  As far as I am concerned I have a new normal life that is surrounded by a loving family, a plethora of amazing friends, and a God that have  all supported me unconditionally and accepted this disease and diet whole-heartedly.  

I feel this struggle was given light this last week when a representative from the Oregon MS Society called wanting me to be a story pitch for the MS Walk this year.  I was finally able to give my voice to this disease and show my grateful attitude for what it has shown me and a positive note for those being diagnosed or feeling like their walls are crumbling with it.  

I cried as I wrote this entry because I remember this past year and all its battles and I know that God's hand was in it all with people and diet, and medication.  The representative reaffirmed it the other day when she said, " I cannot believe that you have only done this walk for one year.  We have people that have been walking for years and do not have near the support you do."  I could not disagree with her.  I hope you can now see his hand on my life as I have. 

I want to take this time to thank all of you that have supported me this past year with your hugs, your listening ears, your wallets, your legs in the walk, your changing of menu when I am coming, your prayers, your understanding when I bough out at last minute, and for stepping up when I could not.  I want you to know I have noticed all of your  efforts and appreciate them with open arms and gratitude.  I am humbled with all of your love and support. Thank you:)


Wednesday, March 18, 2009

A MAGNIFICENT MRI

Well, it's only been 2 and half weeks, but my doctor is finally back in town and so the nurse called with my results today.  The radiologist and my doctor, both agreed on the results which sounded better than I had expected.  All looked good, there was no more activity, meaning no additional lesions were found.  But, also, one lesion was showing no resolution at all.  So it pretty much disappeared.  The nurse said this does happen and that I should be very happy with the results.  Needless to say, I am!

Saturday, March 14, 2009

Emily Moments

Like all other mothers, I adore the majority of comments my children make.  There are also the comments that my children make that are mortifying in public.  Emily has done so many hilarious things lately,  that I am finding it is my girls that are getting me through tax season.  Here are a few of Emily's precious moments lately:


She is taking soccer at Indoor Goals with her friend Jason and let me add, she is not that good so far.  But she LOVES the outfit and always wants her pink shirt to show.  I yell extra loud for her though, so she knows I am proud of her.  So a couple of weeks ago her team scored and I yelled, "  Nice Job!" and whooped a few times I am sure and Emily came over to the side and yelled at me, with arms outstretched, in a my mommy is ridiculous manner, "Mommy, I  didn't score!"  I replied that it didn't matter, I was yelling for the team. "  Thinking she got it I dropped it and then she yelled, " Why did you yell? I didn't score!"  At this point all the parents were trying not to laugh, as was I, and I redirected her back to the field.

We're not proud, but Emily lies to her teachers often.  Not as much this year as last year. Last year, Emily had a tendency to say last night a lot instead of yesterday which caused a lot of confusion.  Therefore, after the Polar Express train ride, she proceeded to tell her teacher " We went on a train last night!" for the month of January.  She also would constantly tell the teacher it was Will's or my birthday last night.  So when her teacher this year came out on Friday during pick up and asked me when we were getting our chihuahua I had to laugh.  I said we are not getting a dog.  Emily had told her we were getting 2!

After the girls' swim lessons on Tues and Thurs nights I was having them shower and wear their pajamas home.  I was always a little nervous though as it is not always shy people that dress in locker rooms.  It was our last class and I thought we had avoided all problems that could have taken place and we were home free.  Kaitlyn was in her dress for the dance and Emily was in her pajamas.  I had the swim bag packed and we were walking out when an older naked lady leisurely walks in front of the girls with no towel, only smile.  I say, " C'mon girls." and Emily begins to laugh and say, " Sister, she's naked!,"in her inside voice.  If you know Emily, you know she has no inside voice.  I am really hoping I got the girls out before the lady could really see who we were and identify us again.   Emily proceeded to tell me all the way to the car that the lady was naked and ask why.

Finally, at Mimi's on Tuesday, out of the blue, she asked me to teach her the Macarena!  I was so proud.  She is definitely my child.  Not only did she do it, but she has performed it for many a people since, WELL.  Next time you see her ask her to do it for you.  It's great!

Thursday, March 12, 2009

Me and My Guy Dance!


A couple of weeks ago, I received an email about a dance for Girls Scouts and their Daddies.  It was called the"Me and My Guy" Dance.  Needless to say, Kaitlyn was ready to go the minute I mentioned it to her. In fact, she went as far as to ask Will if he could get a tux for the event. 


She told EVERYONE about the dance all day today.  Her school teacher, her Girls Scout Leader, even complete strangers at the store.  She repeatedly discussed it at her swim lesson and repeatedly yelled to me from the pool, " Mommy is my dress okay up there?"  Then her teacher, Chas, made a big deal about how pretty she'll be when she left class.  As if she wasn't already confident about that, he surely sealed it.

She wore her Christmas dress and had Will wear a red shirt with black pants. She said they needed to match.  Will came home with flowers for her and then they went to dinner at Red Robin with Keely and Guy Rooker.  Will said they had great snacks and many of Kaitlyn's friends were there with their Dads, too!  She came home exhausted.  That means the event was a real hit!